We have started the journey on the road to help our beautiful little boy Jack get the surgery he needs.
Jack was born with a condition which effects the formation of the outer ear and the development of the ear canal. This condition causes a permanent conductive hearing loss.
Our son needs surgery and to help Jack we will be doing some significant fundraising. Thank you from the bottom of our hearts for any help and support!
Jack Robertson was born on 24th May 2014. He was born with a congenital ear condition called Bilateral (both ears) Microtia Atresia, a condition which effects the formation of the outer ear and the development of the ear canal. This condition causes a permanent conductive hearing loss. Amazingly Jack’s inner ears have formed and his cochlears function perfectly, however without his hearing device he hears like we hear if we put our fingers in our canals.
Jack’s condition is very rare. It has been shown that it effects children bilaterally 1 in 100,000 babies.
The Surgery Solution
For Jack to have outer ear reconstructive surgery and possible ear canal surgery to potentially restore natural hearing, the best surgeons in this field are in the United States. The surgery is not covered by insurance in Australia. The cost is approximately $90,000 per ear. ($180,000 for 2 ears.)
Timing is Crucial
The crucial time of learning and development of speech and language is birth to 5 years. Therefore it is vital that Jack has the best hearing device available. These devices are called BAHA ( Bone Anchored Hearing Aid) where it is possible to hear through sound vibrations on your skull (bone) which are delivered to the cochlear so Jack can hear like we do through bone conduction. These devices are $6,500 AUD each ($13,000 for 2.)
Thank you from the bottom of our hearts for any help and support!
We’re pleased and proud to show you our Latest Fund Raising Events.
Our Latest Event was the Give Jack Ears Gala Dinner.
What a successful evening - raising $46,500!!
A Big Thankyou to all the Sponsors, Volunteers, Committee and Attendees who made the evening such a success.
Thank you so much for all your support.
Freemasons Tea Tree Gully / Freemasons Foundation
We were recently nominated by our dear friends to be considered for funding by Freemasons Tea Tree Gully and the Freemasons Foundation. We were blown away by your generosity and were presented a cheque for $5000 at a presentation ceremony recently!!
Thank you so much to the Freemasons for your Kindness and Generosity and helping to Give Jack Ears.
PLEASE HELP US SUPPORT JACK
Your support is greatly appreciated
Our Goal is to give Jack outer ears to look just like everyone else. Jacks condition has meant his ears aren’t fully developed like everybodys. This surgery is not covered by insurance in Australia.
BAHA ( Bone Anchored Hearing Aid)
For both ears
For both ears
Where we’re at?
Jack undertakes Auditory-Verbal Therapy (AVT) with Chris and the amazing team at Cora Barclay Centre once a week.
AVT facilitates the optimal acquisition of spoken language through listening by newborns, infants, toddlers, and young children who are deaf and hearing impaired.
AVT aims for the child with hearing loss to use listening and spoken language as his/her primary mode of communication and be included in mainstream education from the earliest age possible.
AVT promotes early diagnosis, one-on-one therapy, and state-of-the-art audiological management and technology.
We have started the journey on the road to help our beautiful little boy Jack get the surgery he needs. To do this we will be doing some significant fundraising.
Jacks condition has meant his ears aren’t fully developed like everybodys. This surgery is not covered by insurance in Australia.
Microtia Outer Ear Reconstructive surgery
For Jack to have his Microtia ears reconstructed, the only specialists that speacialise solely in paediatric Microtia Surgery in this field are located in the United States. There are 2 methods for reconstruction (Rib Graft) and (Medpor)
The Right Age
The age when outer ear Microtia surgery can be attempted depends upon the technique chosen. The earliest is 7 for Rib Cartilage Grafts. However, some surgeons recommend waiting until a later age, such as 8–10 when the ear is closer to adult size. External ear prostheses have been made for children as young as 3.
For auricular reconstruction, there are several different options:
Rib Cartilage Graft Reconstruction: This surgery may be performed by specialists in the technique. It involves sculpting the patient’s own rib cartilage into the form of an ear. Because the cartilage is the patient’s own living tissue, the reconstructed ear continues to grow as the child does. In order to be sure that the rib cage is large enough to provide the necessary donor tissue, some surgeons wait until the patient is 8 years of age; however, some surgeons with more experience with this technique may begin the surgery on a child aged six. This surgery varies from two to four stages depending on the surgeon’s preferred method. The major advantage of this surgery is that the patient’s own tissue is used for the reconstruction.
Reconstruct the ear using a polyethylene plastic implant (also called Medpor): This is a 1–2 stage surgery that can start at age 3 and can be done as an outpatient without hospitalization. Using the porous framework, which allows the patient’s tissue to grow into the material and the patient’s own tissue flap, a new ear is constructed in a single surgery. A small second surgery is performed in 3–6 months if needed for minor adjustments. This surgery should only be performed by experts in the techniques involved.
Hearing / Speech and language Development
It is essential that in the crucial time of learning and development of speech and language is birth to 5 years. It is vital that Jack has the best hearing device available. These devices are called BAHA (Bone Anchored Hearing Aid) where it is possible to hear through sound vibrations on your skull (bone) which are are delivered to the cochlear so he can hear. (This is called bone conduction.) These devices are $6500 each.
Ear Canal Surgery / Atresia Repair
As Jack was not born with ear canals it may be an option for him to have ear canals created. This is one of the most complex operations facing surgeons in this field. For this reason at the age of 2 or 3 his ear anatomy in his middle ear is checked via a scan to provide the chances of success to restore natural hearing and the possibility of canals being built to allow air conduction sound in the future. This type of surgery is not generally done until after the age of 8.
Atresia is the underdevelopment of the middle ear and canal and usually occurs in conjunction with microtia. Atresia occurs because patients with microtia may not have an external opening to the ear canal, though. However, the cochlea and other inner ear structures are usually present. The grade of microtia usually correlates to the degree of development of the middle ear. Microtia is usually isolated, but may occur in conjunction with Hemifacial Microsomia, Goldenhar Syndrome or Treacher-Collins Syndrome. It is also occasionally associated with kidney abnormalities (rarely life-threatening), and jaw problems, and more rarely, heart defects and vertebral deformities. Jack does not suffer from any of the Syndromes or possible associated conditions.
We thank you for your support
Get in touch with us
We would be happy to answer any questions and really appreciate your support.